Covid Time, Inclusion Center newsletter

WRITINGS:

Toilet Paper Theory by P,

Sow Your Info, 

Poem "A Measured Hour" by M., 

TOILET PAPER THEORY 

Years ago a friend of mine Stewart and myself were sitting up at night playing two handed poker and drinking beer.   Stu  is much younger than myself and we were talking about how people tended to view life differently as they got older.  We came up with the following analogy 

 " toilet paper theory"

Basically - your life is like a roll of toilet paper.

When you're young you waste a lot of sheets.    You think the roll will never end, or at least the end of the roll is so far away that you never think of it.  You take the roll for granted.  You pull the roll hard and just let it fly, sometimes even letting it roll out in  a pile on the floor.  

 When you get older, that's when you notice that your role is actually getting smaller.  The older you get the less sheets you have left and the more  valuable each sheet becomes.  You realize how important each sheet is and you start looking at how you can get the most out of each and every sheet.

Most people never know how much is actually  left in the role at any given time.  Kind of like when you go to McDonald's and in the stall the roles are covered with that stainless steel cover that doesn't let you see how much is left on  the roll.

The take away - use your sheets wisely.  Get the most out of every sheet because someday the roll will run out.

P.

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Information on Disabilities and medical issues 

SOW YOUR INFO

There's no denying that ALS is a terrible disease and I wish I didn't have it however I don't want to be defined by the disease.   I don't consider myself somebody that is dying from ALS rather I consider myself some of those living my life the best I can.  I just happen to have ALS.

I once read a blog post that stated that  ALS is pretty much a death sentence.   I had to reply to the Post To State my belief that  ALS is  not a death sentence anymore than life itself is a death sentence. We all are born into this world and live our lives until eventually we die.   We have been doing this  for thousands of years.  Some people live longer than others that's just a fact of life.   More important than how long we live is what we do with our life while we're here. It's quality that's important not quantity.   I think there are plenty of people out there who are far less fortunate than myself who do not have ALS.  The more I look around the more I realize how truly lucky I am to be here this long and to live the life that I live. 

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I now have psoriasis. I use a coconut oil/cannabis mixture that is working really well to heal the skin. It’s such a relief to have found something that deals with the symptoms. What I’d really like now is to get rid of the condition, though.

For me, having psoriasis, on top of everything else I’m dealing with, is a symbol that my body is struggling. This depresses me. So now I have all the other issues, psoriasis and depression. Fun times....fun times.....

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