New Crew Debut,
Long Distance Friends
NEW CREW DEBUT
Hello my name is Pat and I'm one of the newer members of the group. I live in East Dummerston, just north of Brattleboro. ( My dog's name is Izzy and she is by far one of my best friends )
About 4 years ago I was diagnosed with ALS. It took about two years going to different neurologists to finally get that diagnosis. Needless to say I was not very pleased. Since then as the disease progressed I went from limping, to walking with a cane, to walking with two canes, to using the Walker. Now I am at the point where I am I pretty much full-time wheelchair-bound.
It's a little ironic because for my whole life I was always an active physical person. I was a good skier. I hiked the mountains. I did rock climbing.I used to bike 10 miles aday some days. I was a hunter. I taught orienteering, I was active in my son's Boy Scout Troop, I rode a motorcycle, jumped out of airplanes, was in the avid trout fisherman, And so much more.
So now here I sit in my living room with my wheelchair next to me watching TV, listening to music on YouTube and Pandora , trying to maintain a good attitude while dealing with Slowly losing all of those physical abilities that carried me through my life so far.
My name is Hanah. I live in Vermont in South Burlington. I used to live in Jericho.
I went to Jericho elementary school when I was little. When I was in Jericho I also went to Browns River Middle School and Mount Mansfield Union High School too.
It was hard for me to move because my mom could not do things with me like she used to. It was a big change for me but I did it. I felt sad and proud of myself because I was growing up and being able to be independent on my own.
When I came to South Burlington it was crazy. I did not know if I felt safe here or not, but I do and it's a good thing. I have three brothers and one sister. I don't get to see them that much but that's ok.
I have William Syndrome. I've had it since I was six months old. I got sick and cold not eat and do other things.
I just want to say I'm glad to be in the zoom meetings with you guys at Inclusion Center. I appreciate it. Thanks so much.
Jen and Erin
LONG DISTANCE FRIENDS
THE NOWADAYS PHASE
Greetings from Colorado! As some of you know, we moved from Brattleboro to Colorado Springs at the end of August. We drove across country with our three cats, Erin and during the pandemic. I followed my husband, Mark, who was pulling a small uhaul trailer. We went through so many states that I hadn't been to....Ohio, Indiana, Illinois, Iowa, Nebraska and Kansas.
Travel wise, it was uneventful...beautiful weather, not much traffic and pet friendly hotels that were really nice. I was so happy to have my cell phone to keep in touch with Mark and our children, Heather and Eric.
It took us about a month to get settled but we still had time to explore the beautiful state of Colorado....so many hiking trails and sights to see. One interesting fact about Colorado Springs...we are almost at the same elevation as Mount Washington!
Erin has settled in very well. She says she loves it here and, of course, being nearer to her brother and sister-in-law is a bonus! We are now going through the process of transferring guardianship from VT to CO which takes a few steps. Also, have to apply for medicaid here so Erin can participate in a program and then register for a program to attend. Because of the pandemic, these last two are not a priority. Erin won't be participating in a program until the spring at the very earliest.
We have not been able to interact with our neighbors but seeing them on our walks gives us a sense of community. There is an unbelievable amount of stores nearby unlike our little town of Brattleboro. I find myself seeking out small downtowns like Historic Colorado Springs, Manitou Springs and Littleton.
We are two hours earlier in Colorado so checking into Inclusion Center is a challenge but we were glad to do just that a couple of weeks ago. It was great to see familiar faces.
We miss you and like everyone across the country, can't wait to get back to normal. Our hearts go out to the families that have lost love ones and all those health care providers that are risking their lives to help others.
Jen, Erin and Mark Ansart